Skip all navigation Skip to page navigation

DHHS Home | A-Z Site Map | Divisions | About Us | Contacts


Physician Practice Reporting

Central Cancer Registry

Physician practice reporting is a program implemented in 2007 by the NC Central Cancer Registry (CCR) to improve the quality and completeness of CCR cancer data. The intent of this page is to inform independent physician practices, ambulatory surgery centers and free-standing cancer treatment centers on the requirement to report incidences of cancer for their patients.

Cancer is a reportable disease in North Carolina. The CCR was established in 1945 to support cancer prevention programs, clinicians, epidemiologists, policy makers and the public in understanding the impact of cancer among North Carolinians. Since 1990, the law that established the registry requires that all health care facilities and health care providers that detect, diagnose, treat or manage patients with cancer, benign central nervous systems tumors and other reportable conditions to report to the CCR within six months of diagnosis.

Traditional data collection for the CCR has been primarily from hospitals. As medical advances have occurred, diagnosis and treatment of certain cancers has moved from the acute care setting to being fully cared for within the physician practice/clinic and therefore never received and counted. Examples include melanoma of the skin; prostate cancer; early colon cancers; and hematopoietic malignancies like leukemia, polycythemia vera and myelodysplastic syndrome. It is important that the CCR receive data from physician practices to avoid the under-reporting of these cancers. Physician practice reporting ensures complete, timely and accurate capture of cancer incidence data for use in cancer control and prevention activities.

Independent physician practices, surgery centers and cancer treatment centers (those not owned by a health system with a CoC Accredited Cancer Program) are required to report eligible cases to the CCR. Links to the North Carolina State Statutes and information on the reporting requirements are provided below.


What is a Cancer Registry?

Have you ever wondered, “How do we know what causes cancer?” or “Who is most likely to get cancer and why?” Learn what a cancer registry is and how they help answer these important questions by using the data reported by health care providers such as yourself.

What is a Cancer Registry? External link
Cancer Registries' Value for You External link
NAACCR YouTube Video about Cancer Registries External link
CDC YouTube Video about Cancer Registries External link

The Positive Impact of Physician Practice Reporting

The physician practice reporting project began in 2007 with the recruitment of dermatology practices. Data from the CCR shows that melanoma incidence in NC has steadily increased since 2003 with the greatest increase occurring in 2007 and after. This corresponds to the concentrated effort by the CCR to onboard dermatology practices for reporting thereby capturing cases that would not be reported through the traditional hospital reporting process.

     2003-2017 Melanoma Case Trends

Physician practice reporting has since expanded to other specialties such as urology, hematology, medical oncology, radiation oncology, surgery centers and gastroenterology.  

     2003-2017 Prostate Cancer Case Trends   2003-2017 Hematopoletic Cancer Case Trends

Being able to include cases diagnosed and treated solely in the physician practice enables the CCR to provide a more complete picture of cancer incidence in NC to those groups involved in cancer control and prevention activities. However, the overall success is dependent on the physician practices themselves, by taking action to report all eligible cases to the CCR.


The Central Cancer Registry is established by North Carolina General Statute Chapter 130A - Article 7. Effective October 1, 2014, legislation mandates electronic reporting to the Central Cancer Registry. Its administrative rules are codified as North Carolina Administrative Code Title 10A - Chapter 47 SubChapter B.

Legal Information (HIPAA)

The following PDF packet contains information compiled from various key resources to explain the public health exemption that allows the disclosure of protected health information to cancer registries (a public health authority) under the Health Insurance Portability and Accountability Act of 1996 (HIPAA).

Legal Documentation and FAQ’s Interpreting HIPAA for CCR Reporting (PDF, 785KB)
CDC Guidance on HIPAA Privacy Rule External link

Reporting Guidelines and Resources

The documents below are intended to assist independent physician practices and free-standing treatment centers in understanding their requirement to report, the types of cases required to be reported and the process of reporting eligible cancer case information to the CCR. CCR staff will work individually with onboarded practices to provide detailed instructions and training for completing the cancer data abstract and meeting the reporting requirements.

Overview of Physician Practice Reporting Requirements (PDF, 3.2MB)
Reporting Poster (PDF, 158KB)
ICD-10-CM Casefinding Codes External link
CCR Brochure (PDF, 1.2 MB)

If you are an independent practice that diagnoses or treats patients with cancer, contact the CCR’s Physician Office Coordinator to begin the onboarding process for reporting.